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This page will include links, video or actual copy of media coverage about the Cure Tay-Sachs Foundation or Tay-Sachs children. We will include links to the newest media items and older items for your review.
The Media is a tool we must utilize to spread our message. Without awareness we cannot raise the necessary funds needed to bring a CURE for Tay-Sachs to reality.
One family is hoping to raise funds for not only awareness, but also a possible cure. Nathan Harney, 2, who was diagnosed with Tay-Sachs Disease when he was 14 months old.....
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�If love was the cure, Elise would live forever.� So wrote John and Laurie ten Berge in a 2007 Cure Tay-Sachs Foundation newsletter. Sadly, their daughter Elise Catherine, born Feb. 5, 2003, lost her battle with Tay-Sachs disease (TSD) in January of this year.
To read the article click here.
Cheryl Babo's quest to find a cure for the disease that took her son Ryan. Cheryl's quest leads her to chair the research initiave program at the NTSAD and help create the Cure Tay-Sachs Foundation to fund that research.
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Article discuss Dakota Bihn's diagnosis of Tay-Sachs disease and the creation of the Cure Tay-Sachs disease. Additonally it tell the stort of LOTS sufferer David Schonberg.
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Dakota Bihn's diagnosis of Tay-Sachs disease drives her father to start the Cure Tay-Sachs Foundation.
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Conventional wisdom dictates that runners, like most athletes, improve with experience. A promising freshman cross-country runner might become the school track star by senior year. But that didn�t happen for Vera Pesotchinsky.
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The 4th Annual Elise Rochman Benefit Concert drew hundreds of supporters and several Tay-Sachs families for an afternoon of music, auctions and fundraising for Tay-Sachs research and support. Tim and Kerri Rochman put on the event to honor thier daugher Elise who has Tay-Sachs disease.
To read the article click here.
Before their daughter�s death in December 2006, Jay and Nikki Arbogast made a promise to thier daughter Payton; they would continue working until a cure for Tay-Sachs is found.
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The Cure Tay-Sachs Foundation was asked to place and add in the March / April issue of Moment Magazine. A magazine focused on Jewish issues, including Genetic Disease in the March / April issue.
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Penn State fans take up cause of thier Ohio State friends and tailgate to raise money for Dakota and Tay-Sachs disease research.
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Two Tay-Sachs children donate hair to Locks of Love. Emma Rabinowitz and Elise ten Berge (and Elise's sister Caroline) donated their beautiful long hair to make wigs for other sick children.
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The Davis family from Portland Oregon takes about the importance of Tay-Sachs Awareness and Family Support!! Thier son Adam died of Tay-Sachs disease in 2001 and they have remained active in fighting Tay-Sachs disease.
To read the article click here.
The article discuss the Tay-Sachs Gene Therapy Consortiums plan to study the use of Gene Therapy in treating Tay-Sachs disease. The Cure Tay-Sachs Foundation is mentioned in the article.
To read the article click here.
Minnesota News covering the story of two little girls (Krystie Karl-Steiger and Cedie Filsmyer) with Tay-Sachs disease currently in the University of Minnesota Hospital and how their struggles with the fatal disease may have very different outcomes.
To read the segment click here.
The local Cleveland morning show named That's Life hosted by Robin Swaboda on Fox 8 did a segment on the Cure Tay-Sachs Foundation and Dakota Bihn. The show taped a segment with Dakota and Julie at school and then had Julie, Bailey, Heidi Penn, and her daughter Mikaela live in studio.
To read the segment click here.
A story about egg donations, surrogates, and the problems with genetic testing in the egg donor industry. Rick Karl and Bruce Steiger fathered Krystie Karl-Steiger using an egg donor and a surrogate. Today Krystie suffers from Tay-Sachs disease.
To read the full article click here.
A story about Krystie Karl-Steiger's cord blood transplant at the University of Minnesota.
To read the segment click here.
A story about Krystie Karl-Steiger. Krystie is 22 months old and under going a cord blood transplant at the University of Minnesota.
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A Thanksgiving Day article about Dakota Bihn and the Cure Tay-Sachs Foundations fundraising efforts.
To read the article click here.
Dakota Bihn and her family appear on the national cable news channel to discuss Tay-Sachs disease and our fund raising efforts.
To view the appearence click here.
Two thieves are caught on tape stealing from a fundraiser designed to support Elise Rochman's battle against Tay-Sachs disease.
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Two thieves are caught on tape stealing from a fundraiser designed to support Elise Rochman's battle against Tay-Sachs disease.
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An article about the community support for Molly Grace Jordan.
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This four day feature includes articles, slide shows, and interactive features. It presents a negative view of the cord blood transplants journey of Dakota Bihn, Alexis Markowich, and Jashaia Small.
To read the full article click here.
An article about Molly Grace Jordan's third birthday party.
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The Hopf family spreads Tay-Sachs Awarness as their own son Conner fights the terminal disease.
To read the full article click here.
An article about how John and Laurie ten Berge spread Tay-Sachs Awareness as they care for their daughter Elise ten Berge who suffers from Tay-Sachs disease.
To read the full article click here.
An article about how Tim and Kerri Rochman celebrate their beautiful daughter Elise's life as she battles against terminal Tay-Sachs disease.
To read the full article click here.
An article about Mark Jordan's tattoo to honor his child Molly Grace Jordan
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The story of the Hopf family and their son Conner who suffers from Tay-Sachs disease.
To read the full article click here.
Maryland Governor Robert Ehrlich wears a bracelet given to him by Carl and Desiree Hopf representing Conner's Way
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An article about Eric and Nicole Fier and how they celebrate the life of their beautiful daughter Rachaeli as she battles Tay-Sachs disease. They choose to celebrate her life instead of anticipating her passing.
To read the full article click here.
An article about a fund raiser for two year old Elise ten Berge who is suffering from Tay-Sachs disease
To read the full article click here.
An article about John and Laurie ten Berge and how their daughter Elise has Tay-Sachs disease even thought they are not Jewish. Tay-Sachs was thought to be a Jewish disease - but six to twelve babies are born each year to none Jewish couples.
To read the full article click here.
The Cure Tay-Sachs Foundation is very grateful you decided to donate and we thank you for your generosity. Your donation will be used to support research to find a cure for Tay-Sachs disease.
The Cure Tay-Sachs Foundation is exempt under Section 501(c)(3) of the Internal Revenue Code, making this gift tax deductible to the fullest extend permitted by law.
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