Katy Balog

Advocacy in Tay-Sachs Awareness: Driving Change and Making an Impact When it comes to rare diseases, visibility is everything. For families affected by Tay-Sachs—a devastating genetic disorder—raising awareness isn’t just…

How Technology in Tay-Sachs Research is Transforming Outcomes Tay-Sachs disease, a rare and fatal genetic disorder, has long posed significant challenges to the medical community. Characterized by the absence of…

Finding Hope and Support for Life After a Tay-Sachs Diagnosis Receiving a Tay-Sachs diagnosis is life-changing, and navigating life after a Tay-Sachs diagnosis can feel overwhelming. Families face complex medical…