Media Coverage

Tay-Sachs gene therapy advancements are creating a new wave of optimism in the fight against this devastating genetic disorder.

Finding Strength and Joy While Parenting a Child with Tay-Sachs Parenting a child with Tay-Sachs is a journey unlike any other, one that blends profound challenges with moments of deep…

How Families in Tay-Sachs Research Are Driving Progress and Partnerships When it comes to rare diseases like Tay-Sachs, progress depends on partnership, not just among scientists, but with the families…

Advocacy in Tay-Sachs Awareness: Driving Change and Making an Impact When it comes to rare diseases, visibility is everything. For families affected by Tay-Sachs—a devastating genetic disorder—raising awareness isn’t just…

How Technology in Tay-Sachs Research is Transforming Outcomes Tay-Sachs disease, a rare and fatal genetic disorder, has long posed significant challenges to the medical community. Characterized by the absence of…

Finding Hope and Support for Life After a Tay-Sachs Diagnosis Receiving a Tay-Sachs diagnosis is life-changing, and navigating life after a Tay-Sachs diagnosis can feel overwhelming. Families face complex medical…

Navigating the Emotional Impact of Tay-Sachs: Support and Strategies A diagnosis of Tay-Sachs disease profoundly affects families, presenting unique emotional challenges that require understanding, support, and effective coping strategies. The…

How Fundraising for Tay-Sachs Research Fuels Hope Tay-Sachs disease is a devastating, fatal genetic disorder that primarily affects infants and children, progressively damaging the nervous system. Despite its severity, research…

Empowering Families with Genetic Counseling for Tay-Sachs Tay-Sachs disease is a rare and devastating genetic condition that deeply impacts affected families. For those navigating the challenges of Tay-Sachs, understanding the…

Uniting the World in Tay-Sachs Awareness Tay-Sachs disease is a rare, inherited condition that devastates lives. It primarily affects the nervous system, with symptoms often appearing in infancy. While this…